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Archive for January, 2010

Saturday

Hello everyone.  Today was a little bit more difficult as Karis threw up twice this morning. Katie believes she is lactose intolerant, but it is hard not to see the nausea as just another reminder that our baby has Krabbe’s. Something I rediscovered today is how indebted I am to my wife. Watching her take care of Karis I am reminded how impatient, narcissistic, and indolent I am. That’s nice, isn’t it? But the other side to that is that by watching her I catch glimpses of the Savior. Katie lives vicariously through Karis. Karis’ every pain, hunger, and need becomes Katie’s. In much the same way, Christ is our Nurturer who sympathizes with our weaknesses, satisfies us with his goodness, and always lives to make intercession for us (Heb. 4:15, 7:25). My wife’s actions are a constant reminder to me of her submission to Christ and his sanctifying work in her life. Boasting of her sacrifical love for Karis is a boasting in the cross because I know that apart from Christ’s death and resurrection and the Spirit’s gracious work in her life, she would have no ability or desire for this kind of selfless love. Thanks be to God!

Karis just threw up for the third time today. As I go to help Katie, let me end by requesting you to pray for the Lord to provide more grace!

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1-29-10

Just a quick note to remind everyone that tomorrow Karis will be 7 months old.  Please consider joining us in a day of prayer and fasting, as we ask God to heal sweet Karis.

Philippians 4: 6-7

Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

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Friends

Caring for Karis | karisalmy.wordpress.com
Some very dear friends have made this button for people to add to their blogs.  I’m going to figure out how to make this a part of the page later =)

Karis is having a WONDERFUL day!!  Please join me in praying for 5 oz at each feeding and no throw up!

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Wednesday, January 27

Karis and I are a little off today.  We missed occupational therapy this morning because Karis was still asleep and I’m feeling horrible.  Being exhausted and having a runny nose is frustrating me beyond belief because I’m one of those annoying people who never gets sick.  This is day two for Karis on a whole Klonopin (again).  She’s just as lethargic as before, but we’re taking it in stride because we know it’s just the medicine.  I finally got to the store to buy a higher-calorie formula for her (a whopping 2 calories an ounce more).  I plan on trying it as soon as she wakes up from her nap, but I’m also hesitant to do so because the last time I tried to take her off soy she vomited incessently. 

Trevor started his second semester of classes today at RTS.  Yay!  We’re hoping to form a good routine so that he can study sufficiently and Karis and I still get to see him!

Please continue to pray that the side effects of the Klonopin will wear off and the medicine will just have the therapeutic effect of relaxing her muscles so she isn’t so tense and isn’t in pain.  Please pray for me that I will start feeling better soon and get some better rest at night so I’m not so terribly exhausted. 

In hope,

Katie

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Today's Nap Time

I am learning (perhaps a little too slowly) through our jouney with Karis that life is simply not going to fit into the perfect little routines that my A-Type, micro-managing self would like them to.  Apparently I’m not in control.  Each day has its highs and lows, ups and downs, that cause me to lean on Christ just a tad bit more than I did the previous “low” or “down.”  Most of yesterday was a “down.”  Karis was completely out of it all day long.  I knew in the back of my mind that it had to be the effects of increased Klonopin, but it looked so much like stage 2 or 3 of Krabbe that I was truly petrified.  I expressed my fears to Trevor and he stopped what he was doing to pray with me.  He prayed an absolutely precious prayer asking the Lord to glorify Himself by allowing us to see Karis’ healing on earth and asking Him to provide a way where the doctors say there is no way.  After the prayer Karis took a short nap.  When she woke up I was met with the most beautiful smile I had seen from her in DAYS… maybe weeks.  Her condition is not worsening… God is still holding her in the palm of His mighty hand and sustaining her health.

It seems like for every horrible day we get, the Lord blesses us with a miraculous day.  Today is the sunshine after the storm.  Karis has been interacting with me all morning and just flipped herself over on my lap even as I am typing this.  She’s tracking things with her eyes and soaking in the world around her.  This morning (and every Sunday morning) I watched First Presbyterian of Jackson on TV.  Dr. Derek Thomas preached on the story of David and Goliath.  He challenged us to challenge our fears.  He asked us to imagine what we are truly petrified of.  (I think it might have taken others listening longer than it took me.)  Then he reminded us that our God never changes.  The One who sustained us through the scary times and previous trials is the One who is with us now and will continue to provide for us and meet us perfectly where we need it.  David had an 8 foot man with 135lbs of armor staring him in the face and all he had to fight him was the power of God working in him.  I have a daughter diagnosed with Krabbe staring me in the face and the only thing I have to fight it is the most powerful weapon anyone could want, Christ in me, the hope of glory.

I will not stop begging Him.  I will not stop trusting Him.  I will not be petrified.

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Scripture

I just thought I’d share some Scripture that the Lord has really used to encourage me.  (Thank you for praying for time in the Word!  He has certainly blessed me with it!)

Psalm 42:5 Why are you cast down, O my soul,and why are you in turmoil within me? Hope in God; for I shall again praise him,
my salvation and my God.

Ephesians 3:20 Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen.

2Corinthians 4:7 But we have this treasure in jars of clay, to show that the surpassing power belongs to God and not to us. 8 We are afflicted in every way, but not crushed; perplexed, but not driven to despair; 9 persecuted, but not forsaken; struck down, but not destroyed; 10 always carrying in the body the death of Jesus, so that the life of Jesus may also be manifested in our bodies.

Psalm 40:17 As for me, I am poor and needy, but the Lord takes thought for me. You are my help and my deliverer;
do not delay, O my God!

2Corinthians 1:20 For all the promises of God find their Yes in him. That is why it is through him that we utter our Amen to God for his glory.

It would be such an enouragement to Trevor and me if you would be willing to share some passages that you have been praying over Karis, or Scripture that has impacted you in a special way.

With hope,

Katie

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There are some things on my heart I’d like to ask for prayer for. 

Let’s start with Miss Karis first.  We started her on Klonopin (an anti-seizure med to help with muscle rigidity) at the beginning of the month.  At first she was on half of a dose and for the past 2 nights I have graduated her to the full dose.  Two of the side effects with this medication is exhaustion and lethargy.  Karis is DEFINITELY struggling with both of those side effects.  She has been like a little blob-o-baby today.  This was really upsetting to me at first, but I know it’s just the Klonopin and I don’t need to get bent out of shape about it.  Please pray that she will adjust to this medicine so it will have a therapeutic effect and the lethargy will subside. 

Additionally, our little love is growing longer, but she’s not growing any heavier =(  She is getting 20 ounces a day but it’s not enough for a growing soon-to-be seven month old!  (Especially one who tends to vomit.)  We are going to try to switch from Enfamil ProSobee soy formula to a higher calorie formula and see if it helps her gain some weight. Please pray for wisdom as we make decisions about Karis’ diet and feeding needs.  Each day presents new challenges and we always want to do what’s best to facilitate growth and development for our little love.  Please pray that the Lord will guide us in how to accomplish our nutrition goals.

My next prayer request is for Trevor.  He is starting classes next week and will be taking 15 hours this semester.  In the mean time he is trying to finish up final exams from LAST semester.  Please pray that Trevor will have Godly descernment this semester and manage his study time, family time, and work time in a way that will glorify the Lord.  Please pray that God will provide Trevor with opportunities to study and that he will finish the previous semester well.

As for me, please pray that the Lord will give me a steady heart.  Lately I have found that my emotions are easily influenced by what I see or what people say they are observing about Karis as opposed letting my emotions be influenced by the Truth and by a God who NEVER CHANGES.  PLEASE pray that God will give me daily time in His Word and allow that to be my strength, not the opinions of man or the performance of my daughter. 

Thank you sweet friends.  He hears.  Never hesitate to share your prayer requests with us!  We love you!

Katie

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